A glimpse into the life of someone with ME/CFS. A must-read for anyone who knows a sufferer.
The book is concise, quick and easy to read; more of a booklet than a book. It engages the reader by asking them to imagine various ways in which ME impacts someone’s life, describing the symptoms and attitudes encountered. It includes a section of shocking quotes from people who don’t understand, and a brief description of what the illness is. As a sufferer myself I recommend this book whole-heartedly. It makes its point successfully and without drowning it in unnecessary information.
Anyone who knows a sufferer of ME/CFS should read this book. Anyone who works in the teaching profession should read this book. Employers should read this book. Everyone should read this book. ME is a common illness, at some point in your life you will meet someone with the condition. ME sufferers themselves should get a copy so they can loan out to anyone who needs to understand what it is like.
I hope this book will prove a big step in raising ME awareness, and on behalf of ME sufferers everywhere I would like to thank Lois Bennett for writing it.
Had a good week. A very good week! My Genre coursework is AT LAST completed and submitted, now I can take a nice long break from unicorns and superheroes. Unfortunately I still have work to do–meh–but the big one’s done. Done! Hooray! I was beginning to think I’d never finish it.
And I’ve finished the second song to submit for Lyrics. Well, I think I have. I’m going to wait a while and have another look at the second verse, see if it does need another tweak, but I think it’s finished or at least virtually finished, which means I’m up to my quota on lyrics to submit for marking–just the critique to go, which while trickier than I anticipated is still looking to be much easier than the Genre critique was.
I also finished another song–not one I’m submitting, as it’s based on Shadow Charge and harder to appreciate without knowledge of the story. I had planned for it to be my second song for coursework, but wasn’t sure when it was finished and showed it to a third party with no knowledge of my novel, who agreed it didn’t really stand alone. But in the context of the story, I’m happy with it, so it wasn’t a waste.
Extract from ‘Leave Me Alone’:
Leave me alone! Let me go!
I can’t take the past’s torment
If bricks couldn’t talk I would be all right
But they can and they whisper through the night
Haunted by what I never wanted
I was only trying to make things right
Posting more would spoil the novel plot, so that’s all you get!
A while ago, one afternoon over coffee dregs, I drafted a couple of Trock songs, something I’d wanted to do for ages but didn’t actually plan on trying before I’d finished all my coursework. But my brain had given up on everything else and I thought, why not? Probably because my brain had given up on everything else, only one chorus is actually more than note form. I quite like it though I wish I had more than that. Still, one day …
On the subject of geeky writing, I surprised myself by making progress on two fan fictions in the last couple of afternoons that hadn’t changed a jot in months. Both Doctor Who, well, that shouldn’t be too much of a surprise. Still neither are at a point in which I’d feel comfortable making them public, alas, but still, progress is progress.
I know what you’re thinking, but fan fiction falls into the same category as fan songs, or anything fan-based really: only when my brain has exhausted everything else. Which is sadly why most afternoons you will find me watching the telly, too knackered to finish all the one-chapter wonders I started posting online prematurely over the last seven years (wow, has it been that long?). Which is why I’m being a lot more careful with the newer ideas, i.e. the Doctor Who ones.
I’ll stop talking geek now, not that I’m apologising for being one (never!), but just not to alienate (pun not intended) too much anyone just stumbled on this blog. I promise I don’t only write about geeky things.
I also write about … stars! I like stars. I’m still learning the constellations, I’m quite a newbie to astronomy, but loving it. And I write about other things too, can’t think of specifics off the top of my head but I do.
I’m coming close to leaving home. As in, for good as opposed to during term time. It’s a scary thought. Not in one go, I’m moving into a flat in a town near my parents, so the idea is over time I’ll gradually clear out my old bedroom so one of my brothers can have it. Might take a while, living in two places basically means having two of everything–or it does for me anyway. I’ve been lacking the energy for a real clear-out for years, but being closer to home is looking to be the time to do it.
I’m going to miss London, but I’ll still be going to Neo Writers and astronomy meets (not all of them every month). In the probably naive hope that one day I’ll be able to afford to move back there on a permanent basis. (Don’t burst my bubble, people.) And my friends had better visit or else …
I am so close with my Genre project now. The bulk of my critique is written, I just need to do the boring stuff like reference and write a conclusion. Oh, and cut it down by a couple of hundred words. And draw one of my book covers.
My aim was to have it done by this weekend. I’m not positive that I’ll make it, but it shouldn’t be too many days afterwards. I won’t be able to do any coursework this weekend at all, what with my friend getting married on Saturday and my parents coming up Sunday to take me home for the hols. And do some cleaning. That reminds me, still need to pack. But before I do that I need to unpack the bits and bobs I shoved out of sight in bags and boxes when my agent was showing a potential tenant round my flat. That could take a while. Maybe I’ll do that Friday morning to take my mind off the Plath presentation. I don’t do public speaking, really I don’t. Just thinking about it gives me butterflies. I can’t believe I once fantasised about being a pop star. Ah well, we were all thirteen once …
I saw Oz: The Great And Powerful yesterday afternoon after my brain had lapsed. The cinema was practically empty, there was only two of us there, me and this older lady who chatted to me on the way out. Vue couldn’t have liked us much, she’d paid with a gift voucher and me by my Nectar points, so they didn’t actually make anything on that particular showing.
The film was good. I only really cringed once, and it was one of those scenes where the audience is supposed to cringe, and thankfully it didn’t last too long. It was visually impressive, even if it hadn’t been in 3D, and the plot twisted just enough to keep me interested without confusing me. I’ve seen the original two Oz films and read the first book but I wouldn’t say I’m overly familiar with Baum’s work (nice in-joke there at the beginning though, I noticed), so I spent a while trying to work out which witch was which (yep, that was deliberate). The black-and-white opening was a nice homage to the original Oz film, though I thought it could have been cut a bit, used less build-up to the tornado. The character of Oz struck a nice balance between my wanting to help him and wanting to slap him–not the character I was expecting. I’d give the film four and a half stars, though that could change after I have read the original story for myself.
I have to ask, the WordPress pros out there, I am still a newbie blogger and have yet to understand the difference between a tag and a category. As far as I can tell, they do the same thing? How does having both benefit an author/reader?
(PS: I don’t own the image, merely borrowing it for illustrative purposes.)
Well, it’s been an interesting day. Delays on both the Tube and National Rail mean I never made it to the charity event I was supposed to be helping to run. I left Waterloo feeling pretty stressed, but after an hour’s nap and a couple of hours listening to a CD of piano hymms, I feel nice and soothed. Plus the PJs and plum tea help.
Also, strangely, after the awful morning I had I wasn’t expecting anything to come of it, but I decided to take a quick look at my ekphrastic poem notes before settling down to watch Hustle all afternoon, just in case there was any spark left in my brain that could do something. My brain surprised me enormously by not only being able to cope with putting the notes into a first draft, but came up with, and started writing, two song ideas as well! Now that is one heck of an achievement for me. Maybe my brain is improving, or maybe it’s a fluke, but at least I’m nearly settled for my tutorial next week now. Thank goodness. Now all I need to do is schedule my glasses appointment and pack for the NSPKU conference, which crept up on me!
I’m not going to think about the rest of my coursework. That’s Saturday’s problem.
Oh look, it’s February 14th. I did know that, I just kind of forgot in the hassle of the day. My take on Valentine’s Day? Like Christmas, a good thing that’s been smothered by consumerism. Not saying I don’t mind roses and hearts–I am a romantic at heart–but would rather receive something more personal for Valentine’s Day than the same as what everyone else gets. I read a very good Doctor Who fanfiction a few months ago where the Doctor takes Rose to see the Rosette Nebula for Valentine’s Day. That’s a tough standard to beat. But I’m sure someone who knows me very well will be able to come up with something.
As a point of interest, that fic was what started me Google imaging nebulas, which gave life to my then-vague interest in astronomy. I fell in love with the beauty of the universe.